It is enough to tear one's hair out.
It's worse when the person showing this ignorance is your insurance company liaison. Why? Because they will block the money you need to get the right device your kid needs, and get it ASAP so the poor child can start
I have placed the suggestion several places that we should have a bake sale and buy these things ourselves. We know where to get them. we know how much they are. We're just broke. Don't know how that happened, with school and therapy and other equipment and whatnot. I fear some folks thought I was/am being facetious.
I am not.
We should get together and have a big, world-wide bake sale. We should advertise it. We should all news outlets and tell them what we are doing and why we are doing it. And we should then publish a big cookbook to continue the project and keep some cash rolling in.
This government thinks little of funding wars, bailing out companies, "fixing" messes others have made with money, but heaven forbid we be trying to make our kids independent, support our kids in their needs and goals. Many of these friends would love to even have a clue what those self-goals are, but the kid can't communicate- because they need the %^#@ device the insurance person says is "not necessary" or not from the vendor they like.
Having me sit here and cuss isn't getting those devices to those people. A bake sale might.