Welcome to Week Five of the school catastrophe. If there was a mistake to be made, we've made it; we now stand as an example of why appropriate service is absolutely vital to the success of a disabled child in school. You can't just shove a child into a program, it has to be individualized with appropriate support- both in quantity and quality, and year-round. Poor transitioning results in disaster.
Transitioning seems to be a major weak point in our school system and faculty training. The teachers Joey has are, to be clear and honest, working their butts off trying to get his puzzle figured out and come up with appropriate solutions to support Joey. However, it is hard to think of solutions when you don't have sufficient understanding of or training in the problem. When one tends to focus on behavior rather than understanding communication and issues, everything becomes a problem of discipline. This can be reinforced when Joey can pull himself together enough to be functional when someone such as the principal or one of his old teachers comes into the room. That the distraction might give him extra incentive to swallow the frustration he is trying desperately to communicate is something that seems ignored, or at least unrecognized. How does one get teachers to recognize that my child is so overwhelming, he has shut down?
And in the meantime, what to do? I have a child so completely overwhelmed, his teachers feel the need to separate him, and have gotten to no academic work in five weeks. When I say this child has shut down, I mean he becomes so completely non-functional that he is removed to a 1:1 self-contained setting- and still gets nowhere. How do I help my child survive this problem of transition, this overwhelming new-ness, this bump on his road?
When the stress is overwhelming, what do you do? After all, shut-down is not an option for most folks who read this blog. We have to keep going, keep functioning. Our children are depending on us to be functional. We're not allowed to be tired and overwhelmed. How do we dive through anxiety, exhaustion, depression, and frustration, to come out the other side with smiles, clean clothes, and possibly a cooked dinner?
Tomorrow, we are going to the doctor with Joey. I haven't yet gotten him into a psychiatrist, so we are going to try a back door- our family physician- to see if there is anything we can do; in other words, we're exploring medication. This is a touchy subject, and I am sure I will get comments and emails, some in great detail, for both sides (pro and con); but sometimes you realize you are fast running out of options, and running out of time, and damage is being done. Sometimes you have to examine the options, so that educated, reasonable, and informed decisions can be made. If Joey continues to be overwhelmed and uncomfortable at school, we could go from bad to worse in a way that would be even more catastrophic.
We'll keep you posted.
P.S.: What she said. That's kind of my life right now.