Thursday, September 21, 2006

Things That Make Life Good (Part Two)

Listening to Joey singing "Wheels on the Bus." Including the verses we made up together.
Andy playing pirate.
Joey with a big chocolate chip cookie in his mouth, when he stirred to the dough to make it.
Boys giggling and running along the sidewalk, waiting for the school bus.
Andy wearing his construction worker hat, stethoscope, and carrying a watering can- then insisting that YOU wear this stuff.
It's the Great Pumpkin, Charlie Brown.
Joey talking on the telephone.
Andy talking on the telephone.
Wondering what everyone wants to be for Halloween.
New stories for boys.
Waking up with two boys bouncing on your tummy.
Goodnight kisses.
Good morning kisses.
"Gimme HUG!"
A boy crawling over you to snuggle in bed at 6 am.
Andy and his Blankie.

And now, the moment we've all been waiting for...

My boys: Joey and Andy. Not that anyone is reading this thing, but there it is, if you happen to stumble in.

We're doing OK today. Andy tossed cookies in the car this morning, but he seems to be feeling much better now. Joey has been a bit quiet, too. We're hoping to go to the fair this weekend, but if they're sick...

We had to wash Blankie today (see previous paragraph), which of course is the End of the World As We Know It. A sub for Blankie had to be found, and none would do. Then I found Allan's old blanket, which his mom sent a while ago- before Andy was born. Anyway, I turned and offered it with, "How about Daddy's blankie?" He snatched it from my grasp, hugged it, and said "Yes." He napped with Daddy's Blankie, thank goodness. He was very happy to have his own Blankie back for bedtime, though.

OT starts next week. We're going to have him checked out by Kluge on Monday, but we figure the OT people can't hurt him.

Sunday, September 17, 2006

Another Day, Another Evaluation

We've just been busy as beavers in a willow wood here. School starting is always interesting, but we've also had a new speech therapist, the return of Joey's ABA therapists. We also had the OT evaluation.

Now, i wasn't that nervous about the OT eval. Everyone at school thinks he's doing so well, and he looks to me like he's doing so well, I just never thought about it. I was way more nervous about the speech eval. However, we've always hit speech hard, because we've always assumed that was his main weakness.

I also often drift into a "place" where Joey is looking good, and I'm comfortable with the help he is getting, and he seems to be improving, so I kind of forget he is disabled. You kind of think of him as 3 instead of 4 in the first place, and don't worry so much. The tantrums become just part of life. The screaming is just what Joey does. He's just a little boy.

We got the "results" of the eval yesterday. It was a real shock to see him being evaluated as 1% and 2% in things like gross motor and fine motor skills. (50% is normal). Is he really this bad off? Why hasn't anyone at school said anything? Why isn't he getting more therapy? What the HELL?

I've decided I'm going to call Kluge and have him evaluated again there- a second opinion. Ultimately, these people we just took him to is a business, and needs to make money. Kluge would be more impartial. But if this is the real picture, I think "conniption fit" is going to be a gentle word to use for what I'm going to have at school.